Just diagnosed with Whipple's disease?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Whipple's disease, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Whipple's disease hub →Overview
Whipple's disease is a rare condition. Also known as Intestinal lipodystrophy. Tomeko brings together the specialists, research, clinical trials, treatments and community for Whipple's disease so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:3452 · ICD-10 K90.8+, M14.8* · GARD 0007889
Find care for Whipple's disease
Authoritative references for Whipple's disease
Research & market landscape for Whipple's disease
Following Whipple's disease for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Whipple's disease — the real-world landscape behind the condition, in one place.
- Latest Whipple's disease research on PubMed ↗
- Recruiting Whipple's disease trials on ClinicalTrials.gov ↗
- Explore the Whipple's disease research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Whipple's disease and every rare condition. See how Tomeko works with industry →
Common questions
What is Whipple's disease?
Whipple's disease is a rare condition. Also known as Intestinal lipodystrophy. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Whipple's disease together in one place.
What are the symptoms of Whipple's disease?
Symptoms of Whipple's disease vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Whipple's disease.
How is Whipple's disease treated?
Treatment for Whipple's disease depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Whipple's disease, and review current options with them.
What causes Whipple's disease — is it genetic?
The cause and inheritance of Whipple's disease are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Whipple's disease can explain what it means for you and your family.
I was just diagnosed with Whipple's disease — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Whipple's disease, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Whipple's disease?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Whipple's disease, filtered to your area.
Are there clinical trials for Whipple's disease?
Tomeko shows live, recruiting studies for Whipple's disease from ClinicalTrials.gov on the hub.
Related conditions
Other conditions on Tomeko you may be looking for: