Just diagnosed with VEXAS syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees VEXAS syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive VEXAS syndrome hub →Overview
VEXAS syndrome is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for VEXAS syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:596753 · OMIM 301054 · ICD-10 M35.8 · GARD 0015001
Find care for VEXAS syndrome
Authoritative references for VEXAS syndrome
Research & market landscape for VEXAS syndrome
Following VEXAS syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for VEXAS syndrome — the real-world landscape behind the condition, in one place.
- Latest VEXAS syndrome research on PubMed ↗
- Recruiting VEXAS syndrome trials on ClinicalTrials.gov ↗
- Explore the VEXAS syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for VEXAS syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is VEXAS syndrome?
VEXAS syndrome is a rare condition. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for VEXAS syndrome together in one place.
What are the symptoms of VEXAS syndrome?
Symptoms of VEXAS syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats VEXAS syndrome.
How is VEXAS syndrome treated?
Treatment for VEXAS syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see VEXAS syndrome, and review current options with them.
What causes VEXAS syndrome — is it genetic?
The cause and inheritance of VEXAS syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats VEXAS syndrome can explain what it means for you and your family.
I was just diagnosed with VEXAS syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees VEXAS syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for VEXAS syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat VEXAS syndrome, filtered to your area.
Are there clinical trials for VEXAS syndrome?
Tomeko shows live, recruiting studies for VEXAS syndrome from ClinicalTrials.gov on the hub.
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