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Venous thoracic outlet syndrome

Specialists and centers, recruiting clinical trials, patient organizations, research, and community for Venous thoracic outlet syndrome — brought together in one place.

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Just diagnosed with Venous thoracic outlet syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Venous thoracic outlet syndrome, look for clinical trials, and connect with others living with it — all in one place.

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Overview

Venous thoracic outlet syndrome is a rare condition. Also known as Venous scalenus anticus syndrome, Venous thoracic outlet compression syndrome, Effort subclavian vein thrombosis, Paget-Schrotter disease, VTOS, Venous TOS, Venous cervical rib syndrome, Venous costoclavicular syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Venous thoracic outlet syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:357131 · ICD-10 G54.0 · GARD 0021536

Find care for Venous thoracic outlet syndrome

Authoritative references for Venous thoracic outlet syndrome

Research & market landscape for Venous thoracic outlet syndrome

Following Venous thoracic outlet syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Venous thoracic outlet syndrome — the real-world landscape behind the condition, in one place.

Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Venous thoracic outlet syndrome and every rare condition. See how Tomeko works with industry →

Common questions

What is Venous thoracic outlet syndrome?

Venous thoracic outlet syndrome is a rare condition. Also known as Venous scalenus anticus syndrome, Venous thoracic outlet compression syndrome, Effort subclavian vein thrombosis, Paget-Schrotter disease, VTOS, Venous TOS, Venous cervical rib syndrome, Venous costoclavicular syndrome. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Venous thoracic outlet syndrome together in one place.

What are the symptoms of Venous thoracic outlet syndrome?

Symptoms of Venous thoracic outlet syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Venous thoracic outlet syndrome.

How is Venous thoracic outlet syndrome treated?

Treatment for Venous thoracic outlet syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Venous thoracic outlet syndrome, and review current options with them.

What causes Venous thoracic outlet syndrome — is it genetic?

The cause and inheritance of Venous thoracic outlet syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Venous thoracic outlet syndrome can explain what it means for you and your family.

I was just diagnosed with Venous thoracic outlet syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Venous thoracic outlet syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Venous thoracic outlet syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Venous thoracic outlet syndrome, filtered to your area.

Are there clinical trials for Venous thoracic outlet syndrome?

Tomeko shows live, recruiting studies for Venous thoracic outlet syndrome from ClinicalTrials.gov on the hub.

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