Just diagnosed with Urban-Rogers-Meyer syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Urban-Rogers-Meyer syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Urban-Rogers-Meyer syndrome hub →Overview
Urban-Rogers-Meyer syndrome is a rare condition. Also known as Intellectual disability-short stature-hand contractures-genital anomalies syndrome, Prader-Willi habitus-osteopenia-camptodactyly syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Urban-Rogers-Meyer syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:3409 · OMIM 264010 · ICD-10 Q87.8 · GARD 0005426
Find care for Urban-Rogers-Meyer syndrome
Authoritative references for Urban-Rogers-Meyer syndrome
Research & market landscape for Urban-Rogers-Meyer syndrome
Following Urban-Rogers-Meyer syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Urban-Rogers-Meyer syndrome — the real-world landscape behind the condition, in one place.
- Latest Urban-Rogers-Meyer syndrome research on PubMed ↗
- Recruiting Urban-Rogers-Meyer syndrome trials on ClinicalTrials.gov ↗
- Explore the Urban-Rogers-Meyer syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Urban-Rogers-Meyer syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is Urban-Rogers-Meyer syndrome?
Urban-Rogers-Meyer syndrome is a rare condition. Also known as Intellectual disability-short stature-hand contractures-genital anomalies syndrome, Prader-Willi habitus-osteopenia-camptodactyly syndrome. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Urban-Rogers-Meyer syndrome together in one place.
What are the symptoms of Urban-Rogers-Meyer syndrome?
Symptoms of Urban-Rogers-Meyer syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Urban-Rogers-Meyer syndrome.
How is Urban-Rogers-Meyer syndrome treated?
Treatment for Urban-Rogers-Meyer syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Urban-Rogers-Meyer syndrome, and review current options with them.
What causes Urban-Rogers-Meyer syndrome — is it genetic?
The cause and inheritance of Urban-Rogers-Meyer syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Urban-Rogers-Meyer syndrome can explain what it means for you and your family.
I was just diagnosed with Urban-Rogers-Meyer syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Urban-Rogers-Meyer syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Urban-Rogers-Meyer syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Urban-Rogers-Meyer syndrome, filtered to your area.
Are there clinical trials for Urban-Rogers-Meyer syndrome?
Tomeko shows live, recruiting studies for Urban-Rogers-Meyer syndrome from ClinicalTrials.gov on the hub.
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