Just diagnosed with Upper eyelid coloboma?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Upper eyelid coloboma, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Upper eyelid coloboma hub →Overview
Upper eyelid coloboma is a rare condition. Also known as Superior palpebral coloboma. Tomeko brings together the specialists, research, clinical trials, treatments and community for Upper eyelid coloboma so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:155884 · ICD-10 Q10.3 · GARD 0019977
Find care for Upper eyelid coloboma
Authoritative references for Upper eyelid coloboma
Research & market landscape for Upper eyelid coloboma
Following Upper eyelid coloboma for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Upper eyelid coloboma — the real-world landscape behind the condition, in one place.
- Latest Upper eyelid coloboma research on PubMed ↗
- Recruiting Upper eyelid coloboma trials on ClinicalTrials.gov ↗
- Explore the Upper eyelid coloboma research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Upper eyelid coloboma and every rare condition. See how Tomeko works with industry →
Common questions
What is Upper eyelid coloboma?
Upper eyelid coloboma is a rare condition. Also known as Superior palpebral coloboma. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Upper eyelid coloboma together in one place.
What are the symptoms of Upper eyelid coloboma?
Symptoms of Upper eyelid coloboma vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Upper eyelid coloboma.
How is Upper eyelid coloboma treated?
Treatment for Upper eyelid coloboma depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Upper eyelid coloboma, and review current options with them.
What causes Upper eyelid coloboma — is it genetic?
The cause and inheritance of Upper eyelid coloboma are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Upper eyelid coloboma can explain what it means for you and your family.
I was just diagnosed with Upper eyelid coloboma — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Upper eyelid coloboma, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Upper eyelid coloboma?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Upper eyelid coloboma, filtered to your area.
Are there clinical trials for Upper eyelid coloboma?
Tomeko shows live, recruiting studies for Upper eyelid coloboma from ClinicalTrials.gov on the hub.
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