Just diagnosed with Systemic sclerosis?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Systemic sclerosis, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Systemic sclerosis hub →Overview
Systemic sclerosis is a rare condition. Also known as Systemic scleroderma. Tomeko brings together the specialists, research, clinical trials, treatments and community for Systemic sclerosis so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:90291 · OMIM 181750 · ICD-10 M34.0, M34.1, M34.2 · GARD 0009748
Find care for Systemic sclerosis
Authoritative references for Systemic sclerosis
Research & market landscape for Systemic sclerosis
Following Systemic sclerosis for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Systemic sclerosis — the real-world landscape behind the condition, in one place.
- Latest Systemic sclerosis research on PubMed ↗
- Recruiting Systemic sclerosis trials on ClinicalTrials.gov ↗
- Explore the Systemic sclerosis research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Systemic sclerosis and every rare condition. See how Tomeko works with industry →
Common questions
What is Systemic sclerosis?
Systemic sclerosis is a rare condition. Also known as Systemic scleroderma. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Systemic sclerosis together in one place.
What are the symptoms of Systemic sclerosis?
Symptoms of Systemic sclerosis vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Systemic sclerosis.
How is Systemic sclerosis treated?
Treatment for Systemic sclerosis depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Systemic sclerosis, and review current options with them.
What causes Systemic sclerosis — is it genetic?
The cause and inheritance of Systemic sclerosis are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Systemic sclerosis can explain what it means for you and your family.
I was just diagnosed with Systemic sclerosis — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Systemic sclerosis, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Systemic sclerosis?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Systemic sclerosis, filtered to your area.
Are there clinical trials for Systemic sclerosis?
Tomeko shows live, recruiting studies for Systemic sclerosis from ClinicalTrials.gov on the hub.
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