Just diagnosed with SUNCT syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees SUNCT syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive SUNCT syndrome hub →Overview
SUNCT syndrome is a rare condition. Also known as Short-lasting unilateral neuralgiform headache attacks with conjunctival injection and tearing. Tomeko brings together the specialists, research, clinical trials, treatments and community for SUNCT syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:57145 · ICD-10 G44.8 · GARD 0009257
Find care for SUNCT syndrome
Authoritative references for SUNCT syndrome
Research & market landscape for SUNCT syndrome
Following SUNCT syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for SUNCT syndrome — the real-world landscape behind the condition, in one place.
- Latest SUNCT syndrome research on PubMed ↗
- Recruiting SUNCT syndrome trials on ClinicalTrials.gov ↗
- Explore the SUNCT syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for SUNCT syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is SUNCT syndrome?
SUNCT syndrome is a rare condition. Also known as Short-lasting unilateral neuralgiform headache attacks with conjunctival injection and tearing. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for SUNCT syndrome together in one place.
What are the symptoms of SUNCT syndrome?
Symptoms of SUNCT syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats SUNCT syndrome.
How is SUNCT syndrome treated?
Treatment for SUNCT syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see SUNCT syndrome, and review current options with them.
What causes SUNCT syndrome — is it genetic?
The cause and inheritance of SUNCT syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats SUNCT syndrome can explain what it means for you and your family.
I was just diagnosed with SUNCT syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees SUNCT syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for SUNCT syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat SUNCT syndrome, filtered to your area.
Are there clinical trials for SUNCT syndrome?
Tomeko shows live, recruiting studies for SUNCT syndrome from ClinicalTrials.gov on the hub.
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