Just diagnosed with Startle epilepsy?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Startle epilepsy, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Startle epilepsy hub →Overview
Startle epilepsy is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for Startle epilepsy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:166427 · ICD-10 G40.5 · GARD 0020081
Find care for Startle epilepsy
Authoritative references for Startle epilepsy
Research & market landscape for Startle epilepsy
Following Startle epilepsy for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Startle epilepsy — the real-world landscape behind the condition, in one place.
- Latest Startle epilepsy research on PubMed ↗
- Recruiting Startle epilepsy trials on ClinicalTrials.gov ↗
- Explore the Startle epilepsy research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Startle epilepsy and every rare condition. See how Tomeko works with industry →
Common questions
What is Startle epilepsy?
Startle epilepsy is a rare condition. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Startle epilepsy together in one place.
What are the symptoms of Startle epilepsy?
Symptoms of Startle epilepsy vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Startle epilepsy.
How is Startle epilepsy treated?
Treatment for Startle epilepsy depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Startle epilepsy, and review current options with them.
What causes Startle epilepsy — is it genetic?
The cause and inheritance of Startle epilepsy are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Startle epilepsy can explain what it means for you and your family.
I was just diagnosed with Startle epilepsy — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Startle epilepsy, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Startle epilepsy?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Startle epilepsy, filtered to your area.
Are there clinical trials for Startle epilepsy?
Tomeko shows live, recruiting studies for Startle epilepsy from ClinicalTrials.gov on the hub.
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- Acute disseminated encephalomyelitis
- Acute disseminated encephalomyelitis with anti-MOG antibodies
- Acute disseminated encephalomyelitis without anti-MOG antibodies
- Acute encephalopathy with biphasic seizures and late reduced diffusion