Just diagnosed with Short bowel syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Short bowel syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Short bowel syndrome hub →Overview
Short bowel syndrome is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for Short bowel syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:104008 · GARD 0001502
Find care for Short bowel syndrome
Patient organizations for Short bowel syndrome
- American Society of Parenteral and Enteral Nutrition
Authoritative references for Short bowel syndrome
Research & market landscape for Short bowel syndrome
Following Short bowel syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Short bowel syndrome — the real-world landscape behind the condition, in one place.
- Latest Short bowel syndrome research on PubMed ↗
- Recruiting Short bowel syndrome trials on ClinicalTrials.gov ↗
- Explore the Short bowel syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Short bowel syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is Short bowel syndrome?
Short bowel syndrome is a rare condition. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Short bowel syndrome together in one place.
What are the symptoms of Short bowel syndrome?
Symptoms of Short bowel syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Short bowel syndrome.
How is Short bowel syndrome treated?
Treatment for Short bowel syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Short bowel syndrome, and review current options with them.
What causes Short bowel syndrome — is it genetic?
The cause and inheritance of Short bowel syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Short bowel syndrome can explain what it means for you and your family.
I was just diagnosed with Short bowel syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Short bowel syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Short bowel syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Short bowel syndrome, filtered to your area.
Are there clinical trials for Short bowel syndrome?
Tomeko shows live, recruiting studies for Short bowel syndrome from ClinicalTrials.gov on the hub.
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