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Shiga toxin-associated hemolytic uremic syndrome

Specialists and centers, recruiting clinical trials, patient organizations, research, and community for Shiga toxin-associated hemolytic uremic syndrome — brought together in one place.

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Just diagnosed with Shiga toxin-associated hemolytic uremic syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Shiga toxin-associated hemolytic uremic syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full interactive Shiga toxin-associated hemolytic uremic syndrome hub →

Overview

Shiga toxin-associated hemolytic uremic syndrome is a rare condition. Also known as D+ HUS, EHEC-HUS, Hemolytic uremic syndrome associated with Shiga toxin-producing Escherichia coli, Hemolytic uremic syndrome with diarrhea, STEC-HUS, Shiga-like toxin-associated HUS, Stx-HUS, Typical HUS. Tomeko brings together the specialists, research, clinical trials, treatments and community for Shiga toxin-associated hemolytic uremic syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:90038 · OMIM 235400 · ICD-10 D58.8 · GARD 0006588

Find care for Shiga toxin-associated hemolytic uremic syndrome

Authoritative references for Shiga toxin-associated hemolytic uremic syndrome

Research & market landscape for Shiga toxin-associated hemolytic uremic syndrome

Following Shiga toxin-associated hemolytic uremic syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Shiga toxin-associated hemolytic uremic syndrome — the real-world landscape behind the condition, in one place.

Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Shiga toxin-associated hemolytic uremic syndrome and every rare condition. See how Tomeko works with industry →

Common questions

What is Shiga toxin-associated hemolytic uremic syndrome?

Shiga toxin-associated hemolytic uremic syndrome is a rare condition. Also known as D+ HUS, EHEC-HUS, Hemolytic uremic syndrome associated with Shiga toxin-producing Escherichia coli, Hemolytic uremic syndrome with diarrhea, STEC-HUS, Shiga-like toxin-associated HUS, Stx-HUS, Typical HUS. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Shiga toxin-associated hemolytic uremic syndrome together in one place.

What are the symptoms of Shiga toxin-associated hemolytic uremic syndrome?

Symptoms of Shiga toxin-associated hemolytic uremic syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Shiga toxin-associated hemolytic uremic syndrome.

How is Shiga toxin-associated hemolytic uremic syndrome treated?

Treatment for Shiga toxin-associated hemolytic uremic syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Shiga toxin-associated hemolytic uremic syndrome, and review current options with them.

What causes Shiga toxin-associated hemolytic uremic syndrome — is it genetic?

The cause and inheritance of Shiga toxin-associated hemolytic uremic syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Shiga toxin-associated hemolytic uremic syndrome can explain what it means for you and your family.

I was just diagnosed with Shiga toxin-associated hemolytic uremic syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Shiga toxin-associated hemolytic uremic syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Shiga toxin-associated hemolytic uremic syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Shiga toxin-associated hemolytic uremic syndrome, filtered to your area.

Are there clinical trials for Shiga toxin-associated hemolytic uremic syndrome?

Tomeko shows live, recruiting studies for Shiga toxin-associated hemolytic uremic syndrome from ClinicalTrials.gov on the hub.

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