Just diagnosed with Scimitar syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Scimitar syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Scimitar syndrome hub →Overview
Scimitar syndrome is a rare condition. Also known as Congenital pulmonary venolobar syndrome, Epibronchial right pulmonary vein syndrome, Halasz syndrome, Hypogenetic lung syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Scimitar syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:185 · ICD-10 Q26.8 · GARD 0018680
Find care for Scimitar syndrome
Authoritative references for Scimitar syndrome
Research & market landscape for Scimitar syndrome
Following Scimitar syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Scimitar syndrome — the real-world landscape behind the condition, in one place.
- Latest Scimitar syndrome research on PubMed ↗
- Recruiting Scimitar syndrome trials on ClinicalTrials.gov ↗
- Explore the Scimitar syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Scimitar syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is Scimitar syndrome?
Scimitar syndrome is a rare condition. Also known as Congenital pulmonary venolobar syndrome, Epibronchial right pulmonary vein syndrome, Halasz syndrome, Hypogenetic lung syndrome. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Scimitar syndrome together in one place.
What are the symptoms of Scimitar syndrome?
Symptoms of Scimitar syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Scimitar syndrome.
How is Scimitar syndrome treated?
Treatment for Scimitar syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Scimitar syndrome, and review current options with them.
What causes Scimitar syndrome — is it genetic?
The cause and inheritance of Scimitar syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Scimitar syndrome can explain what it means for you and your family.
I was just diagnosed with Scimitar syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Scimitar syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Scimitar syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Scimitar syndrome, filtered to your area.
Are there clinical trials for Scimitar syndrome?
Tomeko shows live, recruiting studies for Scimitar syndrome from ClinicalTrials.gov on the hub.
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