Just diagnosed with Schilder disease?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Schilder disease, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Schilder disease hub →Overview
Schilder disease is a rare condition. Also known as Myelinoclastic diffuse sclerosis. Tomeko brings together the specialists, research, clinical trials, treatments and community for Schilder disease so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:59298 · OMIM 272100 · ICD-10 G37.0 · GARD 0016661
Find care for Schilder disease
Authoritative references for Schilder disease
Research & market landscape for Schilder disease
Following Schilder disease for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Schilder disease — the real-world landscape behind the condition, in one place.
- Latest Schilder disease research on PubMed ↗
- Recruiting Schilder disease trials on ClinicalTrials.gov ↗
- Explore the Schilder disease research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Schilder disease and every rare condition. See how Tomeko works with industry →
Common questions
What is Schilder disease?
Schilder disease is a rare condition. Also known as Myelinoclastic diffuse sclerosis. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Schilder disease together in one place.
What are the symptoms of Schilder disease?
Symptoms of Schilder disease vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Schilder disease.
How is Schilder disease treated?
Treatment for Schilder disease depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Schilder disease, and review current options with them.
What causes Schilder disease — is it genetic?
The cause and inheritance of Schilder disease are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Schilder disease can explain what it means for you and your family.
I was just diagnosed with Schilder disease — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Schilder disease, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Schilder disease?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Schilder disease, filtered to your area.
Are there clinical trials for Schilder disease?
Tomeko shows live, recruiting studies for Schilder disease from ClinicalTrials.gov on the hub.
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