Just diagnosed with SAPHO syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees SAPHO syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive SAPHO syndrome hub →Overview
SAPHO syndrome is a rare condition. Also known as Synovitis-acne-pustulosis-hyperostosis-osteitis syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for SAPHO syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:793 · ICD-10 M86.3 · GARD 0007606
Find care for SAPHO syndrome
Authoritative references for SAPHO syndrome
Research & market landscape for SAPHO syndrome
Following SAPHO syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for SAPHO syndrome — the real-world landscape behind the condition, in one place.
- Latest SAPHO syndrome research on PubMed ↗
- Recruiting SAPHO syndrome trials on ClinicalTrials.gov ↗
- Explore the SAPHO syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for SAPHO syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is SAPHO syndrome?
SAPHO syndrome is a rare condition. Also known as Synovitis-acne-pustulosis-hyperostosis-osteitis syndrome. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for SAPHO syndrome together in one place.
What are the symptoms of SAPHO syndrome?
Symptoms of SAPHO syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats SAPHO syndrome.
How is SAPHO syndrome treated?
Treatment for SAPHO syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see SAPHO syndrome, and review current options with them.
What causes SAPHO syndrome — is it genetic?
The cause and inheritance of SAPHO syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats SAPHO syndrome can explain what it means for you and your family.
I was just diagnosed with SAPHO syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees SAPHO syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for SAPHO syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat SAPHO syndrome, filtered to your area.
Are there clinical trials for SAPHO syndrome?
Tomeko shows live, recruiting studies for SAPHO syndrome from ClinicalTrials.gov on the hub.
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