Just diagnosed with Russell-Silver syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Russell-Silver syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Russell-Silver syndrome hub →Overview
Russell-Silver syndrome is a rare condition. Also known as Silver-Russell dwarfism. Tomeko brings together the specialists, research, clinical trials, treatments and community for Russell-Silver syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:813 · OMIM 180860, 312780, 616489 · ICD-10 Q87.1 · GARD 0004870
Find care for Russell-Silver syndrome
Authoritative references for Russell-Silver syndrome
Research & market landscape for Russell-Silver syndrome
Following Russell-Silver syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Russell-Silver syndrome — the real-world landscape behind the condition, in one place.
- Latest Russell-Silver syndrome research on PubMed ↗
- Recruiting Russell-Silver syndrome trials on ClinicalTrials.gov ↗
- Explore the Russell-Silver syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Russell-Silver syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is Russell-Silver syndrome?
Russell-Silver syndrome is a rare condition. Also known as Silver-Russell dwarfism. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Russell-Silver syndrome together in one place.
What are the symptoms of Russell-Silver syndrome?
Symptoms of Russell-Silver syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Russell-Silver syndrome.
How is Russell-Silver syndrome treated?
Treatment for Russell-Silver syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Russell-Silver syndrome, and review current options with them.
What causes Russell-Silver syndrome — is it genetic?
The cause and inheritance of Russell-Silver syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Russell-Silver syndrome can explain what it means for you and your family.
I was just diagnosed with Russell-Silver syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Russell-Silver syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Russell-Silver syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Russell-Silver syndrome, filtered to your area.
Are there clinical trials for Russell-Silver syndrome?
Tomeko shows live, recruiting studies for Russell-Silver syndrome from ClinicalTrials.gov on the hub.
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