Just diagnosed with Retinopathy of prematurity?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Retinopathy of prematurity, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Retinopathy of prematurity hub →Overview
Retinopathy of prematurity is a rare condition. Also known as ROP, Retrolental fibroplasia. Tomeko brings together the specialists, research, clinical trials, treatments and community for Retinopathy of prematurity so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:90050 · OMIM 133780 · ICD-10 H35.1 · GARD 0005695
Find care for Retinopathy of prematurity
Authoritative references for Retinopathy of prematurity
Research & market landscape for Retinopathy of prematurity
Following Retinopathy of prematurity for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Retinopathy of prematurity — the real-world landscape behind the condition, in one place.
- Latest Retinopathy of prematurity research on PubMed ↗
- Recruiting Retinopathy of prematurity trials on ClinicalTrials.gov ↗
- Explore the Retinopathy of prematurity research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Retinopathy of prematurity and every rare condition. See how Tomeko works with industry →
Common questions
What is Retinopathy of prematurity?
Retinopathy of prematurity is a rare condition. Also known as ROP, Retrolental fibroplasia. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Retinopathy of prematurity together in one place.
What are the symptoms of Retinopathy of prematurity?
Symptoms of Retinopathy of prematurity vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Retinopathy of prematurity.
How is Retinopathy of prematurity treated?
Treatment for Retinopathy of prematurity depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Retinopathy of prematurity, and review current options with them.
What causes Retinopathy of prematurity — is it genetic?
The cause and inheritance of Retinopathy of prematurity are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Retinopathy of prematurity can explain what it means for you and your family.
I was just diagnosed with Retinopathy of prematurity — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Retinopathy of prematurity, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Retinopathy of prematurity?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Retinopathy of prematurity, filtered to your area.
Are there clinical trials for Retinopathy of prematurity?
Tomeko shows live, recruiting studies for Retinopathy of prematurity from ClinicalTrials.gov on the hub.
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