Just diagnosed with Pure autonomic failure?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Pure autonomic failure, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Pure autonomic failure hub →Overview
Pure autonomic failure is a rare condition. Also known as Bradbury-Eggleston syndrome, Idiopathic orthostatic hypotension, PAF, Pure dysautonomia, Pure idiopatic dysautonomia. Tomeko brings together the specialists, research, clinical trials, treatments and community for Pure autonomic failure so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:441 · ICD-10 G90.8 · GARD 0010428
Find care for Pure autonomic failure
Authoritative references for Pure autonomic failure
Research & market landscape for Pure autonomic failure
Following Pure autonomic failure for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Pure autonomic failure — the real-world landscape behind the condition, in one place.
- Latest Pure autonomic failure research on PubMed ↗
- Recruiting Pure autonomic failure trials on ClinicalTrials.gov ↗
- Explore the Pure autonomic failure research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Pure autonomic failure and every rare condition. See how Tomeko works with industry →
Common questions
What is Pure autonomic failure?
Pure autonomic failure is a rare condition. Also known as Bradbury-Eggleston syndrome, Idiopathic orthostatic hypotension, PAF, Pure dysautonomia, Pure idiopatic dysautonomia. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Pure autonomic failure together in one place.
What are the symptoms of Pure autonomic failure?
Symptoms of Pure autonomic failure vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Pure autonomic failure.
How is Pure autonomic failure treated?
Treatment for Pure autonomic failure depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Pure autonomic failure, and review current options with them.
What causes Pure autonomic failure — is it genetic?
The cause and inheritance of Pure autonomic failure are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Pure autonomic failure can explain what it means for you and your family.
I was just diagnosed with Pure autonomic failure — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Pure autonomic failure, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Pure autonomic failure?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Pure autonomic failure, filtered to your area.
Are there clinical trials for Pure autonomic failure?
Tomeko shows live, recruiting studies for Pure autonomic failure from ClinicalTrials.gov on the hub.
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