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Progressive supranuclear palsy

Specialists and centers, recruiting clinical trials, patient organizations, research, and community for Progressive supranuclear palsy — brought together in one place.

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Just diagnosed with Progressive supranuclear palsy?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Progressive supranuclear palsy, look for clinical trials, and connect with others living with it — all in one place.

Open the full interactive Progressive supranuclear palsy hub →

Overview

Progressive supranuclear palsy is a rare condition. Also known as PSP syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Progressive supranuclear palsy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:683 · OMIM 260540, 601104, 609454 · ICD-10 G23.1 · GARD 0007471

Find care for Progressive supranuclear palsy

Patient organizations for Progressive supranuclear palsy

  • Association for Frontotemporal Degeneration (AFTD)

Authoritative references for Progressive supranuclear palsy

Research & market landscape for Progressive supranuclear palsy

Following Progressive supranuclear palsy for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Progressive supranuclear palsy — the real-world landscape behind the condition, in one place.

Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Progressive supranuclear palsy and every rare condition. See how Tomeko works with industry →

Common questions

What is Progressive supranuclear palsy?

Progressive supranuclear palsy is a rare condition. Also known as PSP syndrome. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Progressive supranuclear palsy together in one place.

What are the symptoms of Progressive supranuclear palsy?

Symptoms of Progressive supranuclear palsy vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Progressive supranuclear palsy.

How is Progressive supranuclear palsy treated?

Treatment for Progressive supranuclear palsy depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Progressive supranuclear palsy, and review current options with them.

What causes Progressive supranuclear palsy — is it genetic?

The cause and inheritance of Progressive supranuclear palsy are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Progressive supranuclear palsy can explain what it means for you and your family.

I was just diagnosed with Progressive supranuclear palsy — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Progressive supranuclear palsy, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Progressive supranuclear palsy?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Progressive supranuclear palsy, filtered to your area.

Are there clinical trials for Progressive supranuclear palsy?

Tomeko shows live, recruiting studies for Progressive supranuclear palsy from ClinicalTrials.gov on the hub.

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