Just diagnosed with Primary intestinal lymphangiectasia?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Primary intestinal lymphangiectasia, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Primary intestinal lymphangiectasia hub →Overview
Primary intestinal lymphangiectasia is a rare condition. Also known as Waldmann disease. Tomeko brings together the specialists, research, clinical trials, treatments and community for Primary intestinal lymphangiectasia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:90362 · OMIM 152800 · ICD-10 I89.0 · GARD 0007873
Find care for Primary intestinal lymphangiectasia
Authoritative references for Primary intestinal lymphangiectasia
Research & market landscape for Primary intestinal lymphangiectasia
Following Primary intestinal lymphangiectasia for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Primary intestinal lymphangiectasia — the real-world landscape behind the condition, in one place.
- Latest Primary intestinal lymphangiectasia research on PubMed ↗
- Recruiting Primary intestinal lymphangiectasia trials on ClinicalTrials.gov ↗
- Explore the Primary intestinal lymphangiectasia research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Primary intestinal lymphangiectasia and every rare condition. See how Tomeko works with industry →
Common questions
What is Primary intestinal lymphangiectasia?
Primary intestinal lymphangiectasia is a rare condition. Also known as Waldmann disease. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Primary intestinal lymphangiectasia together in one place.
What are the symptoms of Primary intestinal lymphangiectasia?
Symptoms of Primary intestinal lymphangiectasia vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Primary intestinal lymphangiectasia.
How is Primary intestinal lymphangiectasia treated?
Treatment for Primary intestinal lymphangiectasia depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Primary intestinal lymphangiectasia, and review current options with them.
What causes Primary intestinal lymphangiectasia — is it genetic?
The cause and inheritance of Primary intestinal lymphangiectasia are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Primary intestinal lymphangiectasia can explain what it means for you and your family.
I was just diagnosed with Primary intestinal lymphangiectasia — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Primary intestinal lymphangiectasia, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Primary intestinal lymphangiectasia?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Primary intestinal lymphangiectasia, filtered to your area.
Are there clinical trials for Primary intestinal lymphangiectasia?
Tomeko shows live, recruiting studies for Primary intestinal lymphangiectasia from ClinicalTrials.gov on the hub.
Related conditions
Other conditions on Tomeko you may be looking for:
- Acquired aneurysmal subarachnoid hemorrhage
- Arrhythmogenic cardiomyopathy with wooly hair and keratoderma
- Arterial dissection-lentiginosis syndrome
- Atherosclerosis-deafness-diabetes-epilepsy-nephropathy syndrome
- Atrophic papulosis
- Autosomal dominant familial hematuria-retinal arteriolar tortuosity-contractures syndrome
- Autosomal recessive leukoencephalopathy-ischemic stroke-retinitis pigmentosa syndrome
- Brugada syndrome