Just diagnosed with Pelvis-shoulder dysplasia?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Pelvis-shoulder dysplasia, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Pelvis-shoulder dysplasia hub →Overview
Pelvis-shoulder dysplasia is a rare condition. Also known as Kosenow syndrome, Scapuloiliac dysostosis. Tomeko brings together the specialists, research, clinical trials, treatments and community for Pelvis-shoulder dysplasia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2839 · OMIM 169550 · ICD-10 Q87.5 · GARD 0016611
Find care for Pelvis-shoulder dysplasia
Authoritative references for Pelvis-shoulder dysplasia
Research & market landscape for Pelvis-shoulder dysplasia
Following Pelvis-shoulder dysplasia for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Pelvis-shoulder dysplasia — the real-world landscape behind the condition, in one place.
- Latest Pelvis-shoulder dysplasia research on PubMed ↗
- Recruiting Pelvis-shoulder dysplasia trials on ClinicalTrials.gov ↗
- Explore the Pelvis-shoulder dysplasia research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Pelvis-shoulder dysplasia and every rare condition. See how Tomeko works with industry →
Common questions
What is Pelvis-shoulder dysplasia?
Pelvis-shoulder dysplasia is a rare condition. Also known as Kosenow syndrome, Scapuloiliac dysostosis. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Pelvis-shoulder dysplasia together in one place.
What are the symptoms of Pelvis-shoulder dysplasia?
Symptoms of Pelvis-shoulder dysplasia vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Pelvis-shoulder dysplasia.
How is Pelvis-shoulder dysplasia treated?
Treatment for Pelvis-shoulder dysplasia depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Pelvis-shoulder dysplasia, and review current options with them.
What causes Pelvis-shoulder dysplasia — is it genetic?
The cause and inheritance of Pelvis-shoulder dysplasia are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Pelvis-shoulder dysplasia can explain what it means for you and your family.
I was just diagnosed with Pelvis-shoulder dysplasia — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Pelvis-shoulder dysplasia, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Pelvis-shoulder dysplasia?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Pelvis-shoulder dysplasia, filtered to your area.
Are there clinical trials for Pelvis-shoulder dysplasia?
Tomeko shows live, recruiting studies for Pelvis-shoulder dysplasia from ClinicalTrials.gov on the hub.
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