Just diagnosed with Paroxysmal cold hemoglobinuria?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Paroxysmal cold hemoglobinuria, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Paroxysmal cold hemoglobinuria hub →Overview
Paroxysmal cold hemoglobinuria is a rare condition. Also known as Donath-Landsteiner hemolytic anemia, Donath-Landsteiner syndrome, PCH. Tomeko brings together the specialists, research, clinical trials, treatments and community for Paroxysmal cold hemoglobinuria so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:90035 · ICD-10 D59.6 · GARD 0007335
Find care for Paroxysmal cold hemoglobinuria
Authoritative references for Paroxysmal cold hemoglobinuria
Research & market landscape for Paroxysmal cold hemoglobinuria
Following Paroxysmal cold hemoglobinuria for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Paroxysmal cold hemoglobinuria — the real-world landscape behind the condition, in one place.
- Latest Paroxysmal cold hemoglobinuria research on PubMed ↗
- Recruiting Paroxysmal cold hemoglobinuria trials on ClinicalTrials.gov ↗
- Explore the Paroxysmal cold hemoglobinuria research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Paroxysmal cold hemoglobinuria and every rare condition. See how Tomeko works with industry →
Common questions
What is Paroxysmal cold hemoglobinuria?
Paroxysmal cold hemoglobinuria is a rare condition. Also known as Donath-Landsteiner hemolytic anemia, Donath-Landsteiner syndrome, PCH. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Paroxysmal cold hemoglobinuria together in one place.
What are the symptoms of Paroxysmal cold hemoglobinuria?
Symptoms of Paroxysmal cold hemoglobinuria vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Paroxysmal cold hemoglobinuria.
How is Paroxysmal cold hemoglobinuria treated?
Treatment for Paroxysmal cold hemoglobinuria depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Paroxysmal cold hemoglobinuria, and review current options with them.
What causes Paroxysmal cold hemoglobinuria — is it genetic?
The cause and inheritance of Paroxysmal cold hemoglobinuria are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Paroxysmal cold hemoglobinuria can explain what it means for you and your family.
I was just diagnosed with Paroxysmal cold hemoglobinuria — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Paroxysmal cold hemoglobinuria, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Paroxysmal cold hemoglobinuria?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Paroxysmal cold hemoglobinuria, filtered to your area.
Are there clinical trials for Paroxysmal cold hemoglobinuria?
Tomeko shows live, recruiting studies for Paroxysmal cold hemoglobinuria from ClinicalTrials.gov on the hub.
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