Just diagnosed with Paramedian nasal cleft?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Paramedian nasal cleft, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Paramedian nasal cleft hub →Overview
Paramedian nasal cleft is a rare condition. Also known as Alar cleft, Alar rim cleft, Cleft nose, Isolated cleft of the ala nasi, Isolated coloboma of the nose, Tessier number 1 cleft. Tomeko brings together the specialists, research, clinical trials, treatments and community for Paramedian nasal cleft so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:141242 · OMIM 614687 · ICD-10 Q18.8 · GARD 0016973
Find care for Paramedian nasal cleft
Authoritative references for Paramedian nasal cleft
Research & market landscape for Paramedian nasal cleft
Following Paramedian nasal cleft for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Paramedian nasal cleft — the real-world landscape behind the condition, in one place.
- Latest Paramedian nasal cleft research on PubMed ↗
- Recruiting Paramedian nasal cleft trials on ClinicalTrials.gov ↗
- Explore the Paramedian nasal cleft research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Paramedian nasal cleft and every rare condition. See how Tomeko works with industry →
Common questions
What is Paramedian nasal cleft?
Paramedian nasal cleft is a rare condition. Also known as Alar cleft, Alar rim cleft, Cleft nose, Isolated cleft of the ala nasi, Isolated coloboma of the nose, Tessier number 1 cleft. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Paramedian nasal cleft together in one place.
What are the symptoms of Paramedian nasal cleft?
Symptoms of Paramedian nasal cleft vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Paramedian nasal cleft.
How is Paramedian nasal cleft treated?
Treatment for Paramedian nasal cleft depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Paramedian nasal cleft, and review current options with them.
What causes Paramedian nasal cleft — is it genetic?
The cause and inheritance of Paramedian nasal cleft are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Paramedian nasal cleft can explain what it means for you and your family.
I was just diagnosed with Paramedian nasal cleft — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Paramedian nasal cleft, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Paramedian nasal cleft?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Paramedian nasal cleft, filtered to your area.
Are there clinical trials for Paramedian nasal cleft?
Tomeko shows live, recruiting studies for Paramedian nasal cleft from ClinicalTrials.gov on the hub.
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