Just diagnosed with PAPASH syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees PAPASH syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive PAPASH syndrome hub →Overview
PAPASH syndrome is a rare condition. Also known as Pyogenic arthritis-pyoderma gangrenosum-acne-hidradenitis suppurativa syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for PAPASH syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:641380 · ICD-10 L88 · GARD 0027017
Find care for PAPASH syndrome
Authoritative references for PAPASH syndrome
Research & market landscape for PAPASH syndrome
Following PAPASH syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for PAPASH syndrome — the real-world landscape behind the condition, in one place.
- Latest PAPASH syndrome research on PubMed ↗
- Recruiting PAPASH syndrome trials on ClinicalTrials.gov ↗
- Explore the PAPASH syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for PAPASH syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is PAPASH syndrome?
PAPASH syndrome is a rare condition. Also known as Pyogenic arthritis-pyoderma gangrenosum-acne-hidradenitis suppurativa syndrome. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for PAPASH syndrome together in one place.
What are the symptoms of PAPASH syndrome?
Symptoms of PAPASH syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats PAPASH syndrome.
How is PAPASH syndrome treated?
Treatment for PAPASH syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see PAPASH syndrome, and review current options with them.
What causes PAPASH syndrome — is it genetic?
The cause and inheritance of PAPASH syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats PAPASH syndrome can explain what it means for you and your family.
I was just diagnosed with PAPASH syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees PAPASH syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for PAPASH syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat PAPASH syndrome, filtered to your area.
Are there clinical trials for PAPASH syndrome?
Tomeko shows live, recruiting studies for PAPASH syndrome from ClinicalTrials.gov on the hub.
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