Just diagnosed with OSLAM syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees OSLAM syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive OSLAM syndrome hub →Overview
OSLAM syndrome is a rare condition. Also known as Osteosarcoma-limb anomalies-erythroid macrocytosis syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for OSLAM syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2760 · OMIM 165660 · ICD-10 C41.9 · GARD 0004129
Find care for OSLAM syndrome
Authoritative references for OSLAM syndrome
Research & market landscape for OSLAM syndrome
Following OSLAM syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for OSLAM syndrome — the real-world landscape behind the condition, in one place.
- Latest OSLAM syndrome research on PubMed ↗
- Recruiting OSLAM syndrome trials on ClinicalTrials.gov ↗
- Explore the OSLAM syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for OSLAM syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is OSLAM syndrome?
OSLAM syndrome is a rare condition. Also known as Osteosarcoma-limb anomalies-erythroid macrocytosis syndrome. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for OSLAM syndrome together in one place.
What are the symptoms of OSLAM syndrome?
Symptoms of OSLAM syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats OSLAM syndrome.
How is OSLAM syndrome treated?
Treatment for OSLAM syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see OSLAM syndrome, and review current options with them.
What causes OSLAM syndrome — is it genetic?
The cause and inheritance of OSLAM syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats OSLAM syndrome can explain what it means for you and your family.
I was just diagnosed with OSLAM syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees OSLAM syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for OSLAM syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat OSLAM syndrome, filtered to your area.
Are there clinical trials for OSLAM syndrome?
Tomeko shows live, recruiting studies for OSLAM syndrome from ClinicalTrials.gov on the hub.
Related conditions
Other conditions on Tomeko you may be looking for: