Just diagnosed with Opsoclonus-myoclonus syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Opsoclonus-myoclonus syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Opsoclonus-myoclonus syndrome hub →Overview
Opsoclonus-myoclonus syndrome is a rare condition. Also known as Ataxo-opso-myoclonus syndrome, Dancing eye syndrome, Dancing eye-dancing feet syndrome, Kinsbourne syndrome, OMA syndrome, OMS, Opsoclonus-myoclonus-ataxia syndrome, POMA syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Opsoclonus-myoclonus syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1183 · ICD-10 G25.3 · GARD 0010009
Find care for Opsoclonus-myoclonus syndrome
Authoritative references for Opsoclonus-myoclonus syndrome
Research & market landscape for Opsoclonus-myoclonus syndrome
Following Opsoclonus-myoclonus syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Opsoclonus-myoclonus syndrome — the real-world landscape behind the condition, in one place.
- Latest Opsoclonus-myoclonus syndrome research on PubMed ↗
- Recruiting Opsoclonus-myoclonus syndrome trials on ClinicalTrials.gov ↗
- Explore the Opsoclonus-myoclonus syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Opsoclonus-myoclonus syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is Opsoclonus-myoclonus syndrome?
Opsoclonus-myoclonus syndrome is a rare condition. Also known as Ataxo-opso-myoclonus syndrome, Dancing eye syndrome, Dancing eye-dancing feet syndrome, Kinsbourne syndrome, OMA syndrome, OMS, Opsoclonus-myoclonus-ataxia syndrome, POMA syndrome. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Opsoclonus-myoclonus syndrome together in one place.
What are the symptoms of Opsoclonus-myoclonus syndrome?
Symptoms of Opsoclonus-myoclonus syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Opsoclonus-myoclonus syndrome.
How is Opsoclonus-myoclonus syndrome treated?
Treatment for Opsoclonus-myoclonus syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Opsoclonus-myoclonus syndrome, and review current options with them.
What causes Opsoclonus-myoclonus syndrome — is it genetic?
The cause and inheritance of Opsoclonus-myoclonus syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Opsoclonus-myoclonus syndrome can explain what it means for you and your family.
I was just diagnosed with Opsoclonus-myoclonus syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Opsoclonus-myoclonus syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Opsoclonus-myoclonus syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Opsoclonus-myoclonus syndrome, filtered to your area.
Are there clinical trials for Opsoclonus-myoclonus syndrome?
Tomeko shows live, recruiting studies for Opsoclonus-myoclonus syndrome from ClinicalTrials.gov on the hub.
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