Just diagnosed with Oculogastrointestinal muscular dystrophy?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Oculogastrointestinal muscular dystrophy, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Oculogastrointestinal muscular dystrophy hub →Overview
Oculogastrointestinal muscular dystrophy is a rare condition. Also known as Visceral myopathy-familial external ophthalmoplegia syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Oculogastrointestinal muscular dystrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1876 · OMIM 277320 · ICD-10 G71.0 · GARD 0005496
Find care for Oculogastrointestinal muscular dystrophy
Authoritative references for Oculogastrointestinal muscular dystrophy
Research & market landscape for Oculogastrointestinal muscular dystrophy
Following Oculogastrointestinal muscular dystrophy for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Oculogastrointestinal muscular dystrophy — the real-world landscape behind the condition, in one place.
- Latest Oculogastrointestinal muscular dystrophy research on PubMed ↗
- Recruiting Oculogastrointestinal muscular dystrophy trials on ClinicalTrials.gov ↗
- Explore the Oculogastrointestinal muscular dystrophy research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Oculogastrointestinal muscular dystrophy and every rare condition. See how Tomeko works with industry →
Common questions
What is Oculogastrointestinal muscular dystrophy?
Oculogastrointestinal muscular dystrophy is a rare condition. Also known as Visceral myopathy-familial external ophthalmoplegia syndrome. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Oculogastrointestinal muscular dystrophy together in one place.
What are the symptoms of Oculogastrointestinal muscular dystrophy?
Symptoms of Oculogastrointestinal muscular dystrophy vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Oculogastrointestinal muscular dystrophy.
How is Oculogastrointestinal muscular dystrophy treated?
Treatment for Oculogastrointestinal muscular dystrophy depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Oculogastrointestinal muscular dystrophy, and review current options with them.
What causes Oculogastrointestinal muscular dystrophy — is it genetic?
The cause and inheritance of Oculogastrointestinal muscular dystrophy are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Oculogastrointestinal muscular dystrophy can explain what it means for you and your family.
I was just diagnosed with Oculogastrointestinal muscular dystrophy — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Oculogastrointestinal muscular dystrophy, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Oculogastrointestinal muscular dystrophy?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Oculogastrointestinal muscular dystrophy, filtered to your area.
Are there clinical trials for Oculogastrointestinal muscular dystrophy?
Tomeko shows live, recruiting studies for Oculogastrointestinal muscular dystrophy from ClinicalTrials.gov on the hub.
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