Just diagnosed with Moynahan syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Moynahan syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Moynahan syndrome hub →Overview
Moynahan syndrome is a rare condition. Also known as Alopecia-epilepsy-intellectual disability syndrome, Moynahan type. Tomeko brings together the specialists, research, clinical trials, treatments and community for Moynahan syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2574 · OMIM 203600 · GARD 0000606
Find care for Moynahan syndrome
Authoritative references for Moynahan syndrome
Research & market landscape for Moynahan syndrome
Following Moynahan syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Moynahan syndrome — the real-world landscape behind the condition, in one place.
- Latest Moynahan syndrome research on PubMed ↗
- Recruiting Moynahan syndrome trials on ClinicalTrials.gov ↗
- Explore the Moynahan syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Moynahan syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is Moynahan syndrome?
Moynahan syndrome is a rare condition. Also known as Alopecia-epilepsy-intellectual disability syndrome, Moynahan type. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Moynahan syndrome together in one place.
What are the symptoms of Moynahan syndrome?
Symptoms of Moynahan syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Moynahan syndrome.
How is Moynahan syndrome treated?
Treatment for Moynahan syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Moynahan syndrome, and review current options with them.
What causes Moynahan syndrome — is it genetic?
The cause and inheritance of Moynahan syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Moynahan syndrome can explain what it means for you and your family.
I was just diagnosed with Moynahan syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Moynahan syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Moynahan syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Moynahan syndrome, filtered to your area.
Are there clinical trials for Moynahan syndrome?
Tomeko shows live, recruiting studies for Moynahan syndrome from ClinicalTrials.gov on the hub.
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