Just diagnosed with Monomelic amyotrophy?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Monomelic amyotrophy, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Monomelic amyotrophy hub →Overview
Monomelic amyotrophy is a rare condition. Also known as Benign focal amyotrophy, Hirayama disease, JMADUE, Juvenile muscular atrophy of distal upper extremity, Juvenile muscular atrophy of the distal upper limb. Tomeko brings together the specialists, research, clinical trials, treatments and community for Monomelic amyotrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:65684 · OMIM 602440 · ICD-10 G12.8 · GARD 0009697
Find care for Monomelic amyotrophy
Authoritative references for Monomelic amyotrophy
Research & market landscape for Monomelic amyotrophy
Following Monomelic amyotrophy for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Monomelic amyotrophy — the real-world landscape behind the condition, in one place.
- Latest Monomelic amyotrophy research on PubMed ↗
- Recruiting Monomelic amyotrophy trials on ClinicalTrials.gov ↗
- Explore the Monomelic amyotrophy research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Monomelic amyotrophy and every rare condition. See how Tomeko works with industry →
Common questions
What is Monomelic amyotrophy?
Monomelic amyotrophy is a rare condition. Also known as Benign focal amyotrophy, Hirayama disease, JMADUE, Juvenile muscular atrophy of distal upper extremity, Juvenile muscular atrophy of the distal upper limb. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Monomelic amyotrophy together in one place.
What are the symptoms of Monomelic amyotrophy?
Symptoms of Monomelic amyotrophy vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Monomelic amyotrophy.
How is Monomelic amyotrophy treated?
Treatment for Monomelic amyotrophy depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Monomelic amyotrophy, and review current options with them.
What causes Monomelic amyotrophy — is it genetic?
The cause and inheritance of Monomelic amyotrophy are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Monomelic amyotrophy can explain what it means for you and your family.
I was just diagnosed with Monomelic amyotrophy — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Monomelic amyotrophy, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Monomelic amyotrophy?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Monomelic amyotrophy, filtered to your area.
Are there clinical trials for Monomelic amyotrophy?
Tomeko shows live, recruiting studies for Monomelic amyotrophy from ClinicalTrials.gov on the hub.
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