Just diagnosed with Mazabraud syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Mazabraud syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Mazabraud syndrome hub →Overview
Mazabraud syndrome is a rare condition. Also known as Myxoma with fibrous dysplasia. Tomeko brings together the specialists, research, clinical trials, treatments and community for Mazabraud syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:57782 · ICD-10 M85.0 · GARD 0018853
Find care for Mazabraud syndrome
Authoritative references for Mazabraud syndrome
Research & market landscape for Mazabraud syndrome
Following Mazabraud syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Mazabraud syndrome — the real-world landscape behind the condition, in one place.
- Latest Mazabraud syndrome research on PubMed ↗
- Recruiting Mazabraud syndrome trials on ClinicalTrials.gov ↗
- Explore the Mazabraud syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Mazabraud syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is Mazabraud syndrome?
Mazabraud syndrome is a rare condition. Also known as Myxoma with fibrous dysplasia. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Mazabraud syndrome together in one place.
What are the symptoms of Mazabraud syndrome?
Symptoms of Mazabraud syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Mazabraud syndrome.
How is Mazabraud syndrome treated?
Treatment for Mazabraud syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Mazabraud syndrome, and review current options with them.
What causes Mazabraud syndrome — is it genetic?
The cause and inheritance of Mazabraud syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Mazabraud syndrome can explain what it means for you and your family.
I was just diagnosed with Mazabraud syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Mazabraud syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Mazabraud syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Mazabraud syndrome, filtered to your area.
Are there clinical trials for Mazabraud syndrome?
Tomeko shows live, recruiting studies for Mazabraud syndrome from ClinicalTrials.gov on the hub.
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