Just diagnosed with Malignant atrophic papulosis?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Malignant atrophic papulosis, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Malignant atrophic papulosis hub →Overview
Malignant atrophic papulosis is a rare condition. Also known as Cutaneo-muco-intestinal syndrome, MAP, Papulosis atrophicans maligna. Tomeko brings together the specialists, research, clinical trials, treatments and community for Malignant atrophic papulosis so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:679 · OMIM 602248 · ICD-10 I77.8 · GARD 0006249
Find care for Malignant atrophic papulosis
Authoritative references for Malignant atrophic papulosis
Research & market landscape for Malignant atrophic papulosis
Following Malignant atrophic papulosis for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Malignant atrophic papulosis — the real-world landscape behind the condition, in one place.
- Latest Malignant atrophic papulosis research on PubMed ↗
- Recruiting Malignant atrophic papulosis trials on ClinicalTrials.gov ↗
- Explore the Malignant atrophic papulosis research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Malignant atrophic papulosis and every rare condition. See how Tomeko works with industry →
Common questions
What is Malignant atrophic papulosis?
Malignant atrophic papulosis is a rare condition. Also known as Cutaneo-muco-intestinal syndrome, MAP, Papulosis atrophicans maligna. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Malignant atrophic papulosis together in one place.
What are the symptoms of Malignant atrophic papulosis?
Symptoms of Malignant atrophic papulosis vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Malignant atrophic papulosis.
How is Malignant atrophic papulosis treated?
Treatment for Malignant atrophic papulosis depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Malignant atrophic papulosis, and review current options with them.
What causes Malignant atrophic papulosis — is it genetic?
The cause and inheritance of Malignant atrophic papulosis are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Malignant atrophic papulosis can explain what it means for you and your family.
I was just diagnosed with Malignant atrophic papulosis — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Malignant atrophic papulosis, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Malignant atrophic papulosis?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Malignant atrophic papulosis, filtered to your area.
Are there clinical trials for Malignant atrophic papulosis?
Tomeko shows live, recruiting studies for Malignant atrophic papulosis from ClinicalTrials.gov on the hub.
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