Just diagnosed with Lipomatosis dolorosa?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Lipomatosis dolorosa, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Lipomatosis dolorosa hub →Overview
Lipomatosis dolorosa is a rare condition. Also known as Adiposalgia, Adipose tissue rheumatism, Dercum disease, Lipomatosis dolorosa. Tomeko brings together the specialists, research, clinical trials, treatments and community for Lipomatosis dolorosa so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:36397 · OMIM 103200 · ICD-10 E88.2 · GARD 0005750
Find care for Lipomatosis dolorosa
Authoritative references for Lipomatosis dolorosa
Research & market landscape for Lipomatosis dolorosa
Following Lipomatosis dolorosa for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Lipomatosis dolorosa — the real-world landscape behind the condition, in one place.
- Latest Lipomatosis dolorosa research on PubMed ↗
- Recruiting Lipomatosis dolorosa trials on ClinicalTrials.gov ↗
- Explore the Lipomatosis dolorosa research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Lipomatosis dolorosa and every rare condition. See how Tomeko works with industry →
Common questions
What is Lipomatosis dolorosa?
Lipomatosis dolorosa is a rare condition. Also known as Adiposalgia, Adipose tissue rheumatism, Dercum disease, Lipomatosis dolorosa. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Lipomatosis dolorosa together in one place.
What are the symptoms of Lipomatosis dolorosa?
Symptoms of Lipomatosis dolorosa vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Lipomatosis dolorosa.
How is Lipomatosis dolorosa treated?
Treatment for Lipomatosis dolorosa depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Lipomatosis dolorosa, and review current options with them.
What causes Lipomatosis dolorosa — is it genetic?
The cause and inheritance of Lipomatosis dolorosa are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Lipomatosis dolorosa can explain what it means for you and your family.
I was just diagnosed with Lipomatosis dolorosa — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Lipomatosis dolorosa, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Lipomatosis dolorosa?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Lipomatosis dolorosa, filtered to your area.
Are there clinical trials for Lipomatosis dolorosa?
Tomeko shows live, recruiting studies for Lipomatosis dolorosa from ClinicalTrials.gov on the hub.
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