Just diagnosed with Limb body wall complex?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Limb body wall complex, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Limb body wall complex hub →Overview
Limb body wall complex is a rare condition. Also known as Body stalk anomaly, LBWC syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Limb body wall complex so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2369 · ICD-10 Q87.8 · GARD 0003251
Find care for Limb body wall complex
Authoritative references for Limb body wall complex
Research & market landscape for Limb body wall complex
Following Limb body wall complex for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Limb body wall complex — the real-world landscape behind the condition, in one place.
- Latest Limb body wall complex research on PubMed ↗
- Recruiting Limb body wall complex trials on ClinicalTrials.gov ↗
- Explore the Limb body wall complex research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Limb body wall complex and every rare condition. See how Tomeko works with industry →
Common questions
What is Limb body wall complex?
Limb body wall complex is a rare condition. Also known as Body stalk anomaly, LBWC syndrome. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Limb body wall complex together in one place.
What are the symptoms of Limb body wall complex?
Symptoms of Limb body wall complex vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Limb body wall complex.
How is Limb body wall complex treated?
Treatment for Limb body wall complex depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Limb body wall complex, and review current options with them.
What causes Limb body wall complex — is it genetic?
The cause and inheritance of Limb body wall complex are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Limb body wall complex can explain what it means for you and your family.
I was just diagnosed with Limb body wall complex — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Limb body wall complex, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Limb body wall complex?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Limb body wall complex, filtered to your area.
Are there clinical trials for Limb body wall complex?
Tomeko shows live, recruiting studies for Limb body wall complex from ClinicalTrials.gov on the hub.
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