Just diagnosed with Kasabach-Merritt syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Kasabach-Merritt syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Kasabach-Merritt syndrome hub →Overview
Kasabach-Merritt syndrome is a rare condition. Also known as Haemangioma-thrombocytopenia syndrome, Hemangioma-thrombocytopenia syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Kasabach-Merritt syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2330 · OMIM 141000 · ICD-10 D18.0 · GARD 0000070
Find care for Kasabach-Merritt syndrome
Authoritative references for Kasabach-Merritt syndrome
Research & market landscape for Kasabach-Merritt syndrome
Following Kasabach-Merritt syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Kasabach-Merritt syndrome — the real-world landscape behind the condition, in one place.
- Latest Kasabach-Merritt syndrome research on PubMed ↗
- Recruiting Kasabach-Merritt syndrome trials on ClinicalTrials.gov ↗
- Explore the Kasabach-Merritt syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Kasabach-Merritt syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is Kasabach-Merritt syndrome?
Kasabach-Merritt syndrome is a rare condition. Also known as Haemangioma-thrombocytopenia syndrome, Hemangioma-thrombocytopenia syndrome. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Kasabach-Merritt syndrome together in one place.
What are the symptoms of Kasabach-Merritt syndrome?
Symptoms of Kasabach-Merritt syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Kasabach-Merritt syndrome.
How is Kasabach-Merritt syndrome treated?
Treatment for Kasabach-Merritt syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Kasabach-Merritt syndrome, and review current options with them.
What causes Kasabach-Merritt syndrome — is it genetic?
The cause and inheritance of Kasabach-Merritt syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Kasabach-Merritt syndrome can explain what it means for you and your family.
I was just diagnosed with Kasabach-Merritt syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Kasabach-Merritt syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Kasabach-Merritt syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Kasabach-Merritt syndrome, filtered to your area.
Are there clinical trials for Kasabach-Merritt syndrome?
Tomeko shows live, recruiting studies for Kasabach-Merritt syndrome from ClinicalTrials.gov on the hub.
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