Just diagnosed with Interstitial cystitis?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Interstitial cystitis, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Interstitial cystitis hub →Overview
Interstitial cystitis is a rare condition. Also known as Bladder pain syndrome, IC/BPS, IC/PBS, Interstitial cystitis/bladder pain syndrome, Interstitial cystitis/painful bladder syndrome, Painful bladder syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Interstitial cystitis so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:37202 · ICD-10 N30.1 · GARD 0018825
Find care for Interstitial cystitis
Authoritative references for Interstitial cystitis
Research & market landscape for Interstitial cystitis
Following Interstitial cystitis for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Interstitial cystitis — the real-world landscape behind the condition, in one place.
- Latest Interstitial cystitis research on PubMed ↗
- Recruiting Interstitial cystitis trials on ClinicalTrials.gov ↗
- Explore the Interstitial cystitis research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Interstitial cystitis and every rare condition. See how Tomeko works with industry →
Common questions
What is Interstitial cystitis?
Interstitial cystitis is a rare condition. Also known as Bladder pain syndrome, IC/BPS, IC/PBS, Interstitial cystitis/bladder pain syndrome, Interstitial cystitis/painful bladder syndrome, Painful bladder syndrome. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Interstitial cystitis together in one place.
What are the symptoms of Interstitial cystitis?
Symptoms of Interstitial cystitis vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Interstitial cystitis.
How is Interstitial cystitis treated?
Treatment for Interstitial cystitis depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Interstitial cystitis, and review current options with them.
What causes Interstitial cystitis — is it genetic?
The cause and inheritance of Interstitial cystitis are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Interstitial cystitis can explain what it means for you and your family.
I was just diagnosed with Interstitial cystitis — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Interstitial cystitis, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Interstitial cystitis?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Interstitial cystitis, filtered to your area.
Are there clinical trials for Interstitial cystitis?
Tomeko shows live, recruiting studies for Interstitial cystitis from ClinicalTrials.gov on the hub.
Related conditions
Other conditions on Tomeko you may be looking for:
- Autosomal dominant distal renal tubular acidosis
- Autosomal dominant proximal renal tubular acidosis
- Autosomal dominant pseudohypoaldosteronism type 1
- Autosomal recessive distal renal tubular acidosis
- Autosomal recessive proximal renal tubular acidosis
- C3 glomerulonephritis
- Collagen type III glomerulopathy
- Complement 3 glomerulopathy