Just diagnosed with Inclusion body myositis?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Inclusion body myositis, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Inclusion body myositis hub →Overview
Inclusion body myositis is a rare condition. Also known as IBM, Sporadic inclusion body myositis, sIBM. Tomeko brings together the specialists, research, clinical trials, treatments and community for Inclusion body myositis so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:611 · OMIM 147421 · ICD-10 M60.8 · GARD 0003896
Find care for Inclusion body myositis
Authoritative references for Inclusion body myositis
Research & market landscape for Inclusion body myositis
Following Inclusion body myositis for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Inclusion body myositis — the real-world landscape behind the condition, in one place.
- Latest Inclusion body myositis research on PubMed ↗
- Recruiting Inclusion body myositis trials on ClinicalTrials.gov ↗
- Explore the Inclusion body myositis research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Inclusion body myositis and every rare condition. See how Tomeko works with industry →
Common questions
What is Inclusion body myositis?
Inclusion body myositis is a rare condition. Also known as IBM, Sporadic inclusion body myositis, sIBM. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Inclusion body myositis together in one place.
What are the symptoms of Inclusion body myositis?
Symptoms of Inclusion body myositis vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Inclusion body myositis.
How is Inclusion body myositis treated?
Treatment for Inclusion body myositis depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Inclusion body myositis, and review current options with them.
What causes Inclusion body myositis — is it genetic?
The cause and inheritance of Inclusion body myositis are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Inclusion body myositis can explain what it means for you and your family.
I was just diagnosed with Inclusion body myositis — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Inclusion body myositis, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Inclusion body myositis?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Inclusion body myositis, filtered to your area.
Are there clinical trials for Inclusion body myositis?
Tomeko shows live, recruiting studies for Inclusion body myositis from ClinicalTrials.gov on the hub.
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