Just diagnosed with Hinman syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hinman syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Hinman syndrome hub →Overview
Hinman syndrome is a rare condition. Also known as HAS, HS, Hinman-Allen syndrome, Non-neurogenic neurogenic bladder, Occult neuropathic bladder. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hinman syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:84085 · ICD-10 N32.8 · GARD 0019047
Find care for Hinman syndrome
Authoritative references for Hinman syndrome
Research & market landscape for Hinman syndrome
Following Hinman syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Hinman syndrome — the real-world landscape behind the condition, in one place.
- Latest Hinman syndrome research on PubMed ↗
- Recruiting Hinman syndrome trials on ClinicalTrials.gov ↗
- Explore the Hinman syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Hinman syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is Hinman syndrome?
Hinman syndrome is a rare condition. Also known as HAS, HS, Hinman-Allen syndrome, Non-neurogenic neurogenic bladder, Occult neuropathic bladder. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Hinman syndrome together in one place.
What are the symptoms of Hinman syndrome?
Symptoms of Hinman syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Hinman syndrome.
How is Hinman syndrome treated?
Treatment for Hinman syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Hinman syndrome, and review current options with them.
What causes Hinman syndrome — is it genetic?
The cause and inheritance of Hinman syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Hinman syndrome can explain what it means for you and your family.
I was just diagnosed with Hinman syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Hinman syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Hinman syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hinman syndrome, filtered to your area.
Are there clinical trials for Hinman syndrome?
Tomeko shows live, recruiting studies for Hinman syndrome from ClinicalTrials.gov on the hub.
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- Autosomal recessive proximal renal tubular acidosis
- C3 glomerulonephritis
- Collagen type III glomerulopathy
- Complement 3 glomerulopathy