Just diagnosed with Hereditary angioneurotic edema?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hereditary angioneurotic edema, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Hereditary angioneurotic edema hub →Overview
Hereditary angioneurotic edema is a rare condition. Also known as Familial angioneurotic edema, HAE, Hereditary angioneurotic edema, Hereditary bradykinine-induced angioedema, Hereditary non histamine-induced angioedema. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hereditary angioneurotic edema so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:91378 · OMIM 106100, 610618, 619360 · GARD 0005979
Find care for Hereditary angioneurotic edema
Authoritative references for Hereditary angioneurotic edema
Research & market landscape for Hereditary angioneurotic edema
Following Hereditary angioneurotic edema for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Hereditary angioneurotic edema — the real-world landscape behind the condition, in one place.
- Latest Hereditary angioneurotic edema research on PubMed ↗
- Recruiting Hereditary angioneurotic edema trials on ClinicalTrials.gov ↗
- Explore the Hereditary angioneurotic edema research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Hereditary angioneurotic edema and every rare condition. See how Tomeko works with industry →
Common questions
What is Hereditary angioneurotic edema?
Hereditary angioneurotic edema is a rare condition. Also known as Familial angioneurotic edema, HAE, Hereditary angioneurotic edema, Hereditary bradykinine-induced angioedema, Hereditary non histamine-induced angioedema. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Hereditary angioneurotic edema together in one place.
What are the symptoms of Hereditary angioneurotic edema?
Symptoms of Hereditary angioneurotic edema vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Hereditary angioneurotic edema.
How is Hereditary angioneurotic edema treated?
Treatment for Hereditary angioneurotic edema depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Hereditary angioneurotic edema, and review current options with them.
What causes Hereditary angioneurotic edema — is it genetic?
The cause and inheritance of Hereditary angioneurotic edema are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Hereditary angioneurotic edema can explain what it means for you and your family.
I was just diagnosed with Hereditary angioneurotic edema — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Hereditary angioneurotic edema, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Hereditary angioneurotic edema?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hereditary angioneurotic edema, filtered to your area.
Are there clinical trials for Hereditary angioneurotic edema?
Tomeko shows live, recruiting studies for Hereditary angioneurotic edema from ClinicalTrials.gov on the hub.
Related conditions
Other conditions on Tomeko you may be looking for:
- Hereditary angioedema with normal C1inh not related to F12 or PLG variant
- Hereditary antithrombin deficiency
- Hereditary angioedema with normal C1Inh
- Hereditary arginine vasopressin deficiency
- Hereditary angioedema with C1Inh deficiency
- Hereditary arterial and articular multiple calcification syndrome
- Hereditary Angioedema Types I and II
- Hereditary ataxia