Just diagnosed with Grisel syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Grisel syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Grisel syndrome hub →Overview
Grisel syndrome is a rare condition. Also known as Atlantoaxial non-traumatic subluxation. Tomeko brings together the specialists, research, clinical trials, treatments and community for Grisel syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:662255 · ICD-10 M43.8 · GARD 0027171
Find care for Grisel syndrome
Authoritative references for Grisel syndrome
Research & market landscape for Grisel syndrome
Following Grisel syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Grisel syndrome — the real-world landscape behind the condition, in one place.
- Latest Grisel syndrome research on PubMed ↗
- Recruiting Grisel syndrome trials on ClinicalTrials.gov ↗
- Explore the Grisel syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Grisel syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is Grisel syndrome?
Grisel syndrome is a rare condition. Also known as Atlantoaxial non-traumatic subluxation. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Grisel syndrome together in one place.
What are the symptoms of Grisel syndrome?
Symptoms of Grisel syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Grisel syndrome.
How is Grisel syndrome treated?
Treatment for Grisel syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Grisel syndrome, and review current options with them.
What causes Grisel syndrome — is it genetic?
The cause and inheritance of Grisel syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Grisel syndrome can explain what it means for you and your family.
I was just diagnosed with Grisel syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Grisel syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Grisel syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Grisel syndrome, filtered to your area.
Are there clinical trials for Grisel syndrome?
Tomeko shows live, recruiting studies for Grisel syndrome from ClinicalTrials.gov on the hub.
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