Just diagnosed with Frontotemporal dementia?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Frontotemporal dementia, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Frontotemporal dementia hub →Overview
Frontotemporal dementia is a rare condition. Also known as FTD. Tomeko brings together the specialists, research, clinical trials, treatments and community for Frontotemporal dementia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:282 · OMIM 172700, 600274, 600795 · GARD 0008436
Find care for Frontotemporal dementia
Authoritative references for Frontotemporal dementia
Research & market landscape for Frontotemporal dementia
Following Frontotemporal dementia for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Frontotemporal dementia — the real-world landscape behind the condition, in one place.
- Latest Frontotemporal dementia research on PubMed ↗
- Recruiting Frontotemporal dementia trials on ClinicalTrials.gov ↗
- Explore the Frontotemporal dementia research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Frontotemporal dementia and every rare condition. See how Tomeko works with industry →
Common questions
What is Frontotemporal dementia?
Frontotemporal dementia is a rare condition. Also known as FTD. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Frontotemporal dementia together in one place.
What are the symptoms of Frontotemporal dementia?
Symptoms of Frontotemporal dementia vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Frontotemporal dementia.
How is Frontotemporal dementia treated?
Treatment for Frontotemporal dementia depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Frontotemporal dementia, and review current options with them.
What causes Frontotemporal dementia — is it genetic?
The cause and inheritance of Frontotemporal dementia are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Frontotemporal dementia can explain what it means for you and your family.
I was just diagnosed with Frontotemporal dementia — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Frontotemporal dementia, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Frontotemporal dementia?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Frontotemporal dementia, filtered to your area.
Are there clinical trials for Frontotemporal dementia?
Tomeko shows live, recruiting studies for Frontotemporal dementia from ClinicalTrials.gov on the hub.
Related conditions
Other conditions on Tomeko you may be looking for:
- Frontorhiny
- Frontotemporal dementia and/or amyotrophic lateral sclerosis
- Frontonasal dysplasia-bifid nose-upper limb anomalies syndrome
- Frontotemporal dementia and/or amyotrophic lateral sclerosis 1
- Frontonasal dysplasia with alopecia and genital anomaly
- Frontotemporal dementia and/or amyotrophic lateral sclerosis 2
- Frontonasal dysplasia - severe microphthalmia - severe facial clefting syndrome
- Frontotemporal dementia and/or amyotrophic lateral sclerosis 3