Just diagnosed with FLOTCH syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees FLOTCH syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive FLOTCH syndrome hub →Overview
FLOTCH syndrome is a rare condition. Also known as Leukonychia totalis-trichilemmal cysts-ciliary dystrophy syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for FLOTCH syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2045 · ICD-10 Q84.4 · GARD 0002346
Find care for FLOTCH syndrome
Authoritative references for FLOTCH syndrome
Research & market landscape for FLOTCH syndrome
Following FLOTCH syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for FLOTCH syndrome — the real-world landscape behind the condition, in one place.
- Latest FLOTCH syndrome research on PubMed ↗
- Recruiting FLOTCH syndrome trials on ClinicalTrials.gov ↗
- Explore the FLOTCH syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for FLOTCH syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is FLOTCH syndrome?
FLOTCH syndrome is a rare condition. Also known as Leukonychia totalis-trichilemmal cysts-ciliary dystrophy syndrome. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for FLOTCH syndrome together in one place.
What are the symptoms of FLOTCH syndrome?
Symptoms of FLOTCH syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats FLOTCH syndrome.
How is FLOTCH syndrome treated?
Treatment for FLOTCH syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see FLOTCH syndrome, and review current options with them.
What causes FLOTCH syndrome — is it genetic?
The cause and inheritance of FLOTCH syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats FLOTCH syndrome can explain what it means for you and your family.
I was just diagnosed with FLOTCH syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees FLOTCH syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for FLOTCH syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat FLOTCH syndrome, filtered to your area.
Are there clinical trials for FLOTCH syndrome?
Tomeko shows live, recruiting studies for FLOTCH syndrome from ClinicalTrials.gov on the hub.
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