Just diagnosed with Febrile infection-related epilepsy syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Febrile infection-related epilepsy syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Febrile infection-related epilepsy syndrome hub →Overview
Febrile infection-related epilepsy syndrome is a rare condition. Also known as DESC syndrome, Devastating epileptic encephalopathy in school-aged children, FIRES, Fever-induced refractory epileptic encephalopathy in school-aged children, AERRPS, Acute encephalitis with refractory repetitive partial seizures, Acute non-herpetic encephalitis with severe refractory status epilepticus. Tomeko brings together the specialists, research, clinical trials, treatments and community for Febrile infection-related epilepsy syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:163703 · ICD-10 G40.5 · GARD 0011005
Find care for Febrile infection-related epilepsy syndrome
Authoritative references for Febrile infection-related epilepsy syndrome
Research & market landscape for Febrile infection-related epilepsy syndrome
Following Febrile infection-related epilepsy syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Febrile infection-related epilepsy syndrome — the real-world landscape behind the condition, in one place.
- Latest Febrile infection-related epilepsy syndrome research on PubMed ↗
- Recruiting Febrile infection-related epilepsy syndrome trials on ClinicalTrials.gov ↗
- Explore the Febrile infection-related epilepsy syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Febrile infection-related epilepsy syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is Febrile infection-related epilepsy syndrome?
Febrile infection-related epilepsy syndrome is a rare condition. Also known as DESC syndrome, Devastating epileptic encephalopathy in school-aged children, FIRES, Fever-induced refractory epileptic encephalopathy in school-aged children, AERRPS, Acute encephalitis with refractory repetitive partial seizures, Acute non-herpetic encephalitis with severe refractory status epilepticus. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Febrile infection-related epilepsy syndrome together in one place.
What are the symptoms of Febrile infection-related epilepsy syndrome?
Symptoms of Febrile infection-related epilepsy syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Febrile infection-related epilepsy syndrome.
How is Febrile infection-related epilepsy syndrome treated?
Treatment for Febrile infection-related epilepsy syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Febrile infection-related epilepsy syndrome, and review current options with them.
What causes Febrile infection-related epilepsy syndrome — is it genetic?
The cause and inheritance of Febrile infection-related epilepsy syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Febrile infection-related epilepsy syndrome can explain what it means for you and your family.
I was just diagnosed with Febrile infection-related epilepsy syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Febrile infection-related epilepsy syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Febrile infection-related epilepsy syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Febrile infection-related epilepsy syndrome, filtered to your area.
Are there clinical trials for Febrile infection-related epilepsy syndrome?
Tomeko shows live, recruiting studies for Febrile infection-related epilepsy syndrome from ClinicalTrials.gov on the hub.
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