Just diagnosed with Facial hemiatrophy?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Facial hemiatrophy, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Facial hemiatrophy hub →Overview
Facial hemiatrophy is a rare condition. Also known as Hemifacial atrophy, PHA, Parry-Romberg syndrome, Progressive facial hemiatrophy, Romberg syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Facial hemiatrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1214 · OMIM 141300 · ICD-10 G51.8 · GARD 0007338
Find care for Facial hemiatrophy
Authoritative references for Facial hemiatrophy
Research & market landscape for Facial hemiatrophy
Following Facial hemiatrophy for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Facial hemiatrophy — the real-world landscape behind the condition, in one place.
- Latest Facial hemiatrophy research on PubMed ↗
- Recruiting Facial hemiatrophy trials on ClinicalTrials.gov ↗
- Explore the Facial hemiatrophy research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Facial hemiatrophy and every rare condition. See how Tomeko works with industry →
Common questions
What is Facial hemiatrophy?
Facial hemiatrophy is a rare condition. Also known as Hemifacial atrophy, PHA, Parry-Romberg syndrome, Progressive facial hemiatrophy, Romberg syndrome. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Facial hemiatrophy together in one place.
What are the symptoms of Facial hemiatrophy?
Symptoms of Facial hemiatrophy vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Facial hemiatrophy.
How is Facial hemiatrophy treated?
Treatment for Facial hemiatrophy depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Facial hemiatrophy, and review current options with them.
What causes Facial hemiatrophy — is it genetic?
The cause and inheritance of Facial hemiatrophy are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Facial hemiatrophy can explain what it means for you and your family.
I was just diagnosed with Facial hemiatrophy — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Facial hemiatrophy, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Facial hemiatrophy?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Facial hemiatrophy, filtered to your area.
Are there clinical trials for Facial hemiatrophy?
Tomeko shows live, recruiting studies for Facial hemiatrophy from ClinicalTrials.gov on the hub.
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