Just diagnosed with Extramammary Paget disease?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Extramammary Paget disease, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Extramammary Paget disease hub →Overview
Extramammary Paget disease is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for Extramammary Paget disease so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2800 · OMIM 167300 · ICD-10 C44.5 · GARD 0004192
Find care for Extramammary Paget disease
Authoritative references for Extramammary Paget disease
Research & market landscape for Extramammary Paget disease
Following Extramammary Paget disease for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Extramammary Paget disease — the real-world landscape behind the condition, in one place.
- Latest Extramammary Paget disease research on PubMed ↗
- Recruiting Extramammary Paget disease trials on ClinicalTrials.gov ↗
- Explore the Extramammary Paget disease research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Extramammary Paget disease and every rare condition. See how Tomeko works with industry →
Common questions
What is Extramammary Paget disease?
Extramammary Paget disease is a rare condition. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Extramammary Paget disease together in one place.
What are the symptoms of Extramammary Paget disease?
Symptoms of Extramammary Paget disease vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Extramammary Paget disease.
How is Extramammary Paget disease treated?
Treatment for Extramammary Paget disease depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Extramammary Paget disease, and review current options with them.
What causes Extramammary Paget disease — is it genetic?
The cause and inheritance of Extramammary Paget disease are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Extramammary Paget disease can explain what it means for you and your family.
I was just diagnosed with Extramammary Paget disease — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Extramammary Paget disease, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Extramammary Paget disease?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Extramammary Paget disease, filtered to your area.
Are there clinical trials for Extramammary Paget disease?
Tomeko shows live, recruiting studies for Extramammary Paget disease from ClinicalTrials.gov on the hub.
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