Just diagnosed with Dural sinus malformation?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Dural sinus malformation, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Dural sinus malformation hub →Overview
Dural sinus malformation is a rare condition. Also known as Cranial dural arteriovenous fistula, Dural sinus malformation with arteriovenous fistulae. Tomeko brings together the specialists, research, clinical trials, treatments and community for Dural sinus malformation so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:97339 · ICD-10 Q28.3 · GARD 0019368
Find care for Dural sinus malformation
Authoritative references for Dural sinus malformation
Research & market landscape for Dural sinus malformation
Following Dural sinus malformation for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Dural sinus malformation — the real-world landscape behind the condition, in one place.
- Latest Dural sinus malformation research on PubMed ↗
- Recruiting Dural sinus malformation trials on ClinicalTrials.gov ↗
- Explore the Dural sinus malformation research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Dural sinus malformation and every rare condition. See how Tomeko works with industry →
Common questions
What is Dural sinus malformation?
Dural sinus malformation is a rare condition. Also known as Cranial dural arteriovenous fistula, Dural sinus malformation with arteriovenous fistulae. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Dural sinus malformation together in one place.
What are the symptoms of Dural sinus malformation?
Symptoms of Dural sinus malformation vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Dural sinus malformation.
How is Dural sinus malformation treated?
Treatment for Dural sinus malformation depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Dural sinus malformation, and review current options with them.
What causes Dural sinus malformation — is it genetic?
The cause and inheritance of Dural sinus malformation are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Dural sinus malformation can explain what it means for you and your family.
I was just diagnosed with Dural sinus malformation — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Dural sinus malformation, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Dural sinus malformation?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Dural sinus malformation, filtered to your area.
Are there clinical trials for Dural sinus malformation?
Tomeko shows live, recruiting studies for Dural sinus malformation from ClinicalTrials.gov on the hub.
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