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🔗 CustomizeMedical Overview of Duane Retraction Syndrome With Congenital Deafness
Sources citedA rare neurologic disease characterized by the presence of Duane retraction syndrome (i. e. a congenital cranial dysinnervation disorder with unilateral or bilateral limitation of abduction and/or adduction of the eye, as well as globe retraction and palpebral fissure narrowing on attempted adduction) in combination with congenital unilateral or bilateral hearing loss. The sidedness of hearing loss corresponds to the sidedness of the retraction syndrome.
Classification & codes: GARD 0017968 · Orphanet ORPHA:529574 · OMIM 617041 · ICD-10 H50.8
Sources: GARD (NIH/NCATS), Orphanet · last reviewed 2026. Educational only — not medical advice.
News & Updates
ALYFTREK shows positive Phase 3 results in children ages 2–5
Vertex plans global regulatory submissions for this pediatric age group in the first half of 2026.
Airway clearance routines that actually work for teens
3 open trials match this profile
Locations in NC, FL and GA.
Duane Retraction Syndrome With Congenital Deafness Family Conference
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Care & management overview — Duane Retraction Syndrome With Congenital Deafness
Educational programming; see the cited sources on this hub.
Duane Retraction Syndrome With Congenital Deafness News & Developments
The latest Duane Retraction Syndrome With Congenital Deafness research, news and registered trials — live from public sources. Each link opens the source directly; nothing here is auto-summarized or invented.
Recruiting trials
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Treatment & Daily Living
Medical care plus the everyday therapies and supports relevant to Duane Retraction Syndrome With Congenital Deafness. Treatment is individualized — ask your specialist about the medications, procedures and therapies. Browse medications →
Media Center
News, podcasts, books & research for Duane Retraction Syndrome With Congenital Deafness — real coverage, links out, never re-hosted.
Audience Guides
Plain-language guidance for the people around someone with Duane Retraction Syndrome With Congenital Deafness — how to understand it and talk about it. AI-generated for communication, not medical advice; always confirm specifics with a clinician.
Companies Developing Treatments
Biopharma companies with registered trials for Duane Retraction Syndrome With Congenital Deafness — from ClinicalTrials.gov. Informational, not an endorsement, and not every program is in trials.
Preferences only — saved to your account, never shared or sold. No PHI. Sources: GARD (NIH/NCATS), Orphanet.
Tools
Every institution behind the faculty, with their affiliated experts.
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Research Collaboration & Matching
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Mental Health Toolkit
Sources citedCoping strategies, how to find a a specialist therapist, and mental-health resources built for the ups and downs of living with Duane Retraction Syndrome With Congenital Deafness — for patients and caregivers alike.
Preferences only — saved to your account, never shared or sold. No PHI. Sources: GARD (NIH/NCATS), Orphanet.
Grand Rounds & Accredited Education
Open Questions
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Community & Support Groups
For people living with Duane Retraction Syndrome With Congenital Deafness. Peer support, not medical advice; no PHI.
For caregivers and family navigating Duane Retraction Syndrome With Congenital Deafness.
Recent From the Community
Certified Centers of Excellence
CFF networkCare centers and specialists for Duane Retraction Syndrome With Congenital Deafness, from Tomeko’s verified provider directory (CMS NPPES).
Representative CFF centers — the official CFF directory has the complete, current list.
Nonprofits & Foundations
Grants & Financial Help
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Patient & Family Guides
Sources citedAn annual snapshot of Duane Retraction Syndrome With Congenital Deafness research, treatment access and outcomes, written in plain language for patients and families.
Practical starting points and things to plan for in the first year after diagnosis.
Step-by-step guidance, what to expect, and a sample daily routine.
Disclosure, accommodations, insurance transitions and workplace planning for teens and young adults with Duane Retraction Syndrome With Congenital Deafness.
Sources: GARD (NIH/NCATS), Orphanet · last reviewed 2026. Educational only — not medical advice.