Just diagnosed with Double outlet right ventricle?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Double outlet right ventricle, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Double outlet right ventricle hub →Overview
Double outlet right ventricle is a rare condition. Also known as DORV. Tomeko brings together the specialists, research, clinical trials, treatments and community for Double outlet right ventricle so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:3426 · OMIM 217095 · ICD-10 Q20.1 · GARD 0001908
Find care for Double outlet right ventricle
Authoritative references for Double outlet right ventricle
Research & market landscape for Double outlet right ventricle
Following Double outlet right ventricle for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Double outlet right ventricle — the real-world landscape behind the condition, in one place.
- Latest Double outlet right ventricle research on PubMed ↗
- Recruiting Double outlet right ventricle trials on ClinicalTrials.gov ↗
- Explore the Double outlet right ventricle research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Double outlet right ventricle and every rare condition. See how Tomeko works with industry →
Common questions
What is Double outlet right ventricle?
Double outlet right ventricle is a rare condition. Also known as DORV. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Double outlet right ventricle together in one place.
What are the symptoms of Double outlet right ventricle?
Symptoms of Double outlet right ventricle vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Double outlet right ventricle.
How is Double outlet right ventricle treated?
Treatment for Double outlet right ventricle depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Double outlet right ventricle, and review current options with them.
What causes Double outlet right ventricle — is it genetic?
The cause and inheritance of Double outlet right ventricle are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Double outlet right ventricle can explain what it means for you and your family.
I was just diagnosed with Double outlet right ventricle — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Double outlet right ventricle, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Double outlet right ventricle?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Double outlet right ventricle, filtered to your area.
Are there clinical trials for Double outlet right ventricle?
Tomeko shows live, recruiting studies for Double outlet right ventricle from ClinicalTrials.gov on the hub.
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