Just diagnosed with Distal monosomy 19p13.3?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Distal monosomy 19p13.3, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Distal monosomy 19p13.3 hub →Overview
Distal monosomy 19p13.3 is a rare condition. Also known as Distal deletion 19p13.3, Distal monosomy 19p13.3, Telomeric deletion 19p. Tomeko brings together the specialists, research, clinical trials, treatments and community for Distal monosomy 19p13.3 so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:96129 · ICD-10 Q93.5 · GARD 0019326
Find care for Distal monosomy 19p13.3
Authoritative references for Distal monosomy 19p13.3
Research & market landscape for Distal monosomy 19p13.3
Following Distal monosomy 19p13.3 for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Distal monosomy 19p13.3 — the real-world landscape behind the condition, in one place.
- Latest Distal monosomy 19p13.3 research on PubMed ↗
- Recruiting Distal monosomy 19p13.3 trials on ClinicalTrials.gov ↗
- Explore the Distal monosomy 19p13.3 research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Distal monosomy 19p13.3 and every rare condition. See how Tomeko works with industry →
Common questions
What is Distal monosomy 19p13.3?
Distal monosomy 19p13.3 is a rare condition. Also known as Distal deletion 19p13.3, Distal monosomy 19p13.3, Telomeric deletion 19p. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Distal monosomy 19p13.3 together in one place.
What are the symptoms of Distal monosomy 19p13.3?
Symptoms of Distal monosomy 19p13.3 vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Distal monosomy 19p13.3.
How is Distal monosomy 19p13.3 treated?
Treatment for Distal monosomy 19p13.3 depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Distal monosomy 19p13.3, and review current options with them.
What causes Distal monosomy 19p13.3 — is it genetic?
The cause and inheritance of Distal monosomy 19p13.3 are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Distal monosomy 19p13.3 can explain what it means for you and your family.
I was just diagnosed with Distal monosomy 19p13.3 — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Distal monosomy 19p13.3, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Distal monosomy 19p13.3?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Distal monosomy 19p13.3, filtered to your area.
Are there clinical trials for Distal monosomy 19p13.3?
Tomeko shows live, recruiting studies for Distal monosomy 19p13.3 from ClinicalTrials.gov on the hub.
Related conditions
Other conditions on Tomeko you may be looking for: