Just diagnosed with Diprosopus?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Diprosopus, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Diprosopus hub →Overview
Diprosopus is a rare condition. Also known as Craniofacial duplication, Diprosopia. Tomeko brings together the specialists, research, clinical trials, treatments and community for Diprosopus so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1681 · ICD-10 Q89.4 · GARD 0001876
Find care for Diprosopus
Authoritative references for Diprosopus
Research & market landscape for Diprosopus
Following Diprosopus for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Diprosopus — the real-world landscape behind the condition, in one place.
- Latest Diprosopus research on PubMed ↗
- Recruiting Diprosopus trials on ClinicalTrials.gov ↗
- Explore the Diprosopus research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Diprosopus and every rare condition. See how Tomeko works with industry →
Common questions
What is Diprosopus?
Diprosopus is a rare condition. Also known as Craniofacial duplication, Diprosopia. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Diprosopus together in one place.
What are the symptoms of Diprosopus?
Symptoms of Diprosopus vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Diprosopus.
How is Diprosopus treated?
Treatment for Diprosopus depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Diprosopus, and review current options with them.
What causes Diprosopus — is it genetic?
The cause and inheritance of Diprosopus are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Diprosopus can explain what it means for you and your family.
I was just diagnosed with Diprosopus — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Diprosopus, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Diprosopus?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Diprosopus, filtered to your area.
Are there clinical trials for Diprosopus?
Tomeko shows live, recruiting studies for Diprosopus from ClinicalTrials.gov on the hub.
Related conditions
Other conditions on Tomeko you may be looking for: