Just diagnosed with Diastematomyelia?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Diastematomyelia, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Diastematomyelia hub →Overview
Diastematomyelia is a rare condition. Also known as Diastematomyelia, SCM type 1, SCM type I, Split cord malformation type 1. Tomeko brings together the specialists, research, clinical trials, treatments and community for Diastematomyelia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1671 · OMIM 222500 · ICD-10 Q06.2 · GARD 0001851
Find care for Diastematomyelia
Authoritative references for Diastematomyelia
Research & market landscape for Diastematomyelia
Following Diastematomyelia for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Diastematomyelia — the real-world landscape behind the condition, in one place.
- Latest Diastematomyelia research on PubMed ↗
- Recruiting Diastematomyelia trials on ClinicalTrials.gov ↗
- Explore the Diastematomyelia research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Diastematomyelia and every rare condition. See how Tomeko works with industry →
Common questions
What is Diastematomyelia?
Diastematomyelia is a rare condition. Also known as Diastematomyelia, SCM type 1, SCM type I, Split cord malformation type 1. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Diastematomyelia together in one place.
What are the symptoms of Diastematomyelia?
Symptoms of Diastematomyelia vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Diastematomyelia.
How is Diastematomyelia treated?
Treatment for Diastematomyelia depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Diastematomyelia, and review current options with them.
What causes Diastematomyelia — is it genetic?
The cause and inheritance of Diastematomyelia are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Diastematomyelia can explain what it means for you and your family.
I was just diagnosed with Diastematomyelia — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Diastematomyelia, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Diastematomyelia?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Diastematomyelia, filtered to your area.
Are there clinical trials for Diastematomyelia?
Tomeko shows live, recruiting studies for Diastematomyelia from ClinicalTrials.gov on the hub.
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