Just diagnosed with CREST syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees CREST syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive CREST syndrome hub →Overview
CREST syndrome is a rare condition. Also known as Calcinosis-Raynaud phenomenon-esophageal involvement-sclerodactyly-telangiectasia syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for CREST syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:90290 · ICD-10 M34.1 · GARD 0025139
Find care for CREST syndrome
Authoritative references for CREST syndrome
Research & market landscape for CREST syndrome
Following CREST syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for CREST syndrome — the real-world landscape behind the condition, in one place.
- Latest CREST syndrome research on PubMed ↗
- Recruiting CREST syndrome trials on ClinicalTrials.gov ↗
- Explore the CREST syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for CREST syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is CREST syndrome?
CREST syndrome is a rare condition. Also known as Calcinosis-Raynaud phenomenon-esophageal involvement-sclerodactyly-telangiectasia syndrome. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for CREST syndrome together in one place.
What are the symptoms of CREST syndrome?
Symptoms of CREST syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats CREST syndrome.
How is CREST syndrome treated?
Treatment for CREST syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see CREST syndrome, and review current options with them.
What causes CREST syndrome — is it genetic?
The cause and inheritance of CREST syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats CREST syndrome can explain what it means for you and your family.
I was just diagnosed with CREST syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees CREST syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for CREST syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat CREST syndrome, filtered to your area.
Are there clinical trials for CREST syndrome?
Tomeko shows live, recruiting studies for CREST syndrome from ClinicalTrials.gov on the hub.
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