Just diagnosed with Cooks syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Cooks syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Cooks syndrome hub →Overview
Cooks syndrome is a rare condition. Also known as Anonychia-onychodystrophy with hypoplasia or absence of distal phalanges syndrome, ODP. Tomeko brings together the specialists, research, clinical trials, treatments and community for Cooks syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1487 · OMIM 106995 · ICD-10 Q84.6 · GARD 0004083
Find care for Cooks syndrome
Authoritative references for Cooks syndrome
Research & market landscape for Cooks syndrome
Following Cooks syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Cooks syndrome — the real-world landscape behind the condition, in one place.
- Latest Cooks syndrome research on PubMed ↗
- Recruiting Cooks syndrome trials on ClinicalTrials.gov ↗
- Explore the Cooks syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Cooks syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is Cooks syndrome?
Cooks syndrome is a rare condition. Also known as Anonychia-onychodystrophy with hypoplasia or absence of distal phalanges syndrome, ODP. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Cooks syndrome together in one place.
What are the symptoms of Cooks syndrome?
Symptoms of Cooks syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Cooks syndrome.
How is Cooks syndrome treated?
Treatment for Cooks syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Cooks syndrome, and review current options with them.
What causes Cooks syndrome — is it genetic?
The cause and inheritance of Cooks syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Cooks syndrome can explain what it means for you and your family.
I was just diagnosed with Cooks syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Cooks syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Cooks syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Cooks syndrome, filtered to your area.
Are there clinical trials for Cooks syndrome?
Tomeko shows live, recruiting studies for Cooks syndrome from ClinicalTrials.gov on the hub.
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